The GUCH Patients Association Blog

Invitation to take part in a research project to identify the genes that cause inherited congenital heart disease

Continue reading ‘New research project into genetics at Birmingham’ »

Birmingham Queen Elizabeth Hospital (Post Grad centre), March 6th 2010, 10AM – 1:30PM

We will be joined by speakers from within the Midlands healthcare system, including Dr Sara Thorne, Consultant Cardiologist, industry experts and GUCH member speakers.

Continue reading ‘Patient Information Event in Birmingham!’ »

Celebrate Awareness Day in Cambridge with GUCH PA

Join GUCH members, volunteers and staff for a gentle, wintery walk (optional!) through Cambridge, followed by a buffet lunch and hot drinks!

Continue reading ‘Winter walk and lunch in Cambridge’ »

Christmas Hours for GUCH PA

Please note that GUCH PA head office will be closed from December 24th, re- opening on Monday January 4th 2010. This also includes the Telephone Helpline service.

Below are some useful contact numbers for various organizations should you feel you need help or support over the Christmas period.

• The Samaritans – 08457 90 90 90 – www.samaritans.org
• NHS Direct  - 0845 4647 – www.nhsdirect.nhs.uk
• Emergency services – 999

GUCH PA would like to wish all its members, friends and well-wishers, a very Happy Christmas time and prosperous New Year.

GUCH PA is delighted to invite you to our winter walk and social to celebrate Heart Awareness Week 2010.

Join us on Saturday 13th February for a relaxed social meetup followed by an optional stroll around the beautiful town of Cambridge. Meet new people and catch up with old GUCH friends. Light refreshments, snacks and hot drinks will be available afterwards at a venue to be confirmed soon.

For more information or to book a free place, please contact the office on 01473 252 007 or email admin@guch.org.uk

This event is open to all adults born with a heart condition, their friends and families.”

Do you want to help write GUCH PA’s official quarterly magazine?!?!

GUCH News provides up to date health news and member views and is freely available to all our members and units nationwide. We have a fast growing base meaning that our articles and features are reaching more patients and health care professionals than ever before!

With a growing demand and growing member base, GUCH News is always looking for new, engaging GUCH related articles, interviews, features and editorial assistance.

If you want to get involved and contribute to an issue, or become a regular writer, please contact the editor on victoria@guch.org.uk

0800 854759

Our friendly, trained telephone advisors are available to take calls on a range of GUCH related issues and sign post to other relevant organizations.

• Monday: 2pm – 5pm and 7pm – 9.30pm
• Tuesday: 6pm – 8.30pm
• Wednesday: 10am – 12.30pm
• Thursday 4pm – 7pm
• Friday: 1pm – 4pm

We do have an answer phone which is on 24/7, 365 days a week. Unfortunately due to the sheer volume of calls we have it is not possible to guarantee that we can get back to every message. Therefore it is encouraged that, if possible, you call during the above stated opening hours.

Continue reading ‘Updated open hours for the GUCH PA Helpline!’ »

If you are a GUCH patient you have a greater risk of becoming more seriously ill from swine flu than the general population.

Continue reading ‘Swine Flu information for GUCH Patients’ »

MANCHESTER – Patients, friends and family.

GUCH PA is excited to announce an event for patients at and around the Manchester Royal Infirmary, on Saturday October 31st.

Continue reading ‘GUCH Patient Information Event – October 31st 2009’ »

• Do you have 3 hours a week you could spare to help GUCH patients, their friends, families and care professionals?
• Do you have a BT land line?
• Are you compassionate, professional, reliable and possess a good telephone manner?

If you answer “yes” to all of the above and would like to find out more about volunteering with GUCH PA’s telephone helpline, please contact the Volunteer Manager on Victoria@guch.org.uk