Lifestyle Leaflet – We’ve listened to what you’ve said.
Thank you everyone, for completing the Lifestyle Leaflet survey, we have listened to what you have said and we are making changes to better meet your needs. Just some of the many comments that you made are listed below
What you told us
- It would be good to include some exercise guides, encouraging patients to undertake as much as they can, with of course, guidance from their respective specialists.
- Could be more realistically informative about piercings etc as CLNs will give completely different info to cardiologists and it seems much more logical, practical, and realistic
- Safety of spas e.g. saunas, steam rooms, hydrotherapy pools and massages. Is Viagra safe?
- Many of you found the leaflet informative and supportive, however some found the leaflet patronising and preaching and one person said that it left them with not much fun in life
What we will do next
We will take all your feedback and use it to redesign the leaflet so that it works better for you. We will also make sure that it is cross referenced with other leaflets (such as pregnancy) and consider writing separate information on employment, careers etc. We will also update the endocarditis information or we may even leave it out altogether, perhaps it’s not really a lifestyle issue, we are still reading and thinking and taking on board everything that you said.
We will then let one of our specialist cardiologists double check that anything that we are saying that’s medically related is correct. Finally of course the new leaflet will be printed and sent to GUCH Units and made available on the website and from the office. Thanks once again!
